New hope for manic depressives/bipolars
Wednesday, January 31st, 2007Just heard from an old friend that there is a new web site, called
Equilibrium - The Bipolar Foundation
It filled me with the dread disease optimism because it is an interesting new iniative tackling what is an important problem. As Equilbrium says:
Bipolar disorder probably affects up to 254 million worldwide, 12 million in the US and 2.4 million people in the UK….
Bipolar disorder is the currently fashionable label for what used to be called ‘manic depression’. And that includes me, as well as the other 254 million in the world. (How does Equilibrium know that figure is a fact? Have 254 million people actually been diagnosed as ‘bipolar disorder’? What is written in the brackets here is not by Bob Jones, the manic depressive. It is written by Bob Jones, the sceptical journalist. Who has somehow or other found a way of living in the same mind/body entity that is called Bob Jones.)
This is part of the manic depressive diary category of my blog, which has the declared intention of speaking out about how it is to be a manic depressive.
But my keyboard has now been taken over by the sceptical journalist, the other Bob Jones.
First, the positive side. This is Equilibrium’s recommended approach to the treatment of manic depressives, which is the best that I have found on any of the web sites dealing with such matters.
- tailored to the individual
- is responsive to the course, development and improvement of symptoms over time and may emphasise different components at different times
In our opinion the ideal approach has to be a collaborative one which usually requires:
- early recognition of symptoms and correct diagnosis
- acceptance of the existence of the problem
There is good clinical evidence for the following tools being used in combination:
- Some form of clear information giving, ‘psychoeducation’ and opportunity of clarification of questions and concerns about diagnosis and treament
- Some type of pharmacological (drug) therapy
- Some form of talking based therapy
The only correction I would suggest to Equlibrium is that their first stage of ‘clear information giving’ should be extended to the partners/parents of the manic depressive.
Negative
There is no mention that I have found on the Equilbrium website about the issues that I have been blogging about in relation to the continuing debate in the House of Lords over the amendments to the Mental Health Bill. There is no mention of the fact that despite the huge advances in the treatment of mental health during my lifetime, in some ways we have gone backwards. The evidence coming out in the House of Lords, and provided in the long research project at the LSE, which resulted in the Layard Report, is that the mentally ill, are a drain on the economy, and that the modern methods of treatment they have received, have mostly not enabled them to get back into the work force.
In other words, the pills that are currently administered to mental health patients of all kinds, can help them to behave as ‘normals, and not upset other people, or at the extreme, harm or kill other people. But pills alone do not help the manic depressive or the bipolars, to earn their own living.
Back in the Stone Age, when my father, who was an undiagnosed manic depressive, was living, things were much worse. His manic depression blighted the life of his family, as well as causing him the most profound unhappiness. But despite that he managed to do a full day’s work right up until the day he retired, aged 65, with far less than the average in ‘days off sick’ which were were never for depression, but just when he caught something like bronchitis, which came from the atmosphere of the Black Country, of which Wolverhampton is a part.
We have advanced hugely since my father’s day.
And, although I have inherited my father’s manic depressive genes, I have also inherited my mother’s genes. She came from a long line of successful small shopkeepers, the same gene stream that produced Margaret Thatcher. Indeed, had my mother been born a generation later, and had she married a successful businessman like Denis Thatcher, rather than a working class manic depressive like my father, she might have ended up as Prime Minister. (This is a joke!) But not entirely because my mother managed our family budget on quite similar principles to those which Margaret Thatcher tried to apply to national and international economies.
My father was never a drain on the national economy. And he lived and died never knowing that he was a ‘manic depressive’ or suffered from ‘bipolar disorder’. His life would have been infinitely happier if he had lived in an age when bodies like Eqillbrium were avalable to help him understand his inner torments.
But I do know, that despite his lifelong ‘black moods, which loomed over my childhood and the childhood of my brother and sister, he died a happy man.
Because I was there. Thanks to the fact that my pay cheque was being paid by prestigious but relatively humane organisations (the Manchester Business School and The Times) I was able to temporarily to drop everything and go back to Wolverhampton to be with my father in the two weeks before he died.
I know he died a happy man because I was there. I was sleeping in the same bed as my father, and when I woke up, he was dead. But I remember our last conversation, which I also wrote down at the time as well).
My father never had any real help with his ‘black moods’. Nor did my mother. Nor did his children. What I realised in the last two weeks I spent with my father was that although all of his family had suffered from his ‘black moods’, our suffering was small in relation to his.
Nothing I have suffered in my life, compares with what he suffered. I have, after all, benefited from my mother’s Thatcher-like genes. And, I have also benefited from what was not available to him, a decent education. Which he enabled me to have, despite his manic depression.
Had my father been treated only with the pills, he would certainly not have blighted his family so much with his ‘black moods’. The pills would have made him feel better. And more able to talk to his family.
But whether he would have then died a happier man I doubt.
Because, of course, he was not only a manic depressive. He was a human being, defined by many other qualities he had, along with his manic depressiion.
That included a determination to give his children, the things that he did not have. Particularly, an education which helped them to develop whatever talents they had. And a determination to think for himself, and act for himself, and to help others, rather than be a burden on them.
Had my father been treated with the best that the 21st century has to offer manic depressives, he might have died even happier than he actually did.
But he might not. Had he been treated, like many of the mentally ill are today only with pills, he would have been able to control his moods better, but he might have ended up, like so many mentally ill today, without a job.
And that would caused him a lot of unhappiness. Because he would have hated taking state benefits or charity. Even when he was so depressed that he could not talk to people, he still managed to drag himself to work every day. And when the depression hit him at weekends, he often retired to the shed, where he exercised his carpentry skills.
That is why I find the approach of Equilibrium so refreshing. Because their starting point is tailoring the treatment to the individual, which requires a lot of talking. And because they are committed to including in the treatment ’some kind of talking therapy’.
This treatment they propose can only be made widely available if the Government and the national health trusts are prepared to spend more on the mentally ill. So I hope Equilibrium will also became a political pressure group, arguing the case with ministers and NHS managers. And building on the Layard Report which demonstrates demonstrates spending more on mental health, will also lead to longer term economic benefits, if it enables the mentally ill to get jobs, rather than depend on state handouts.